Director, PSS Rare Disease Data Strategy, Architecture and Governance - Sanofi

Job title: Director, PSS Rare Disease Data Strategy, Architecture and Governance

Location: Morristown, NJ

About the Job

Sanofi's Rare Disease Patient Support Services (PSS) organization operates at the intersection of clinical complexity, patient intimacy, and data intensity unlike any other therapeutic area in the enterprise. This is a transformational, leadership position serving as the single point of end-to-end accountability for how PSS data is structured, governed, protected, and converted into meaningful insights, automated actions, and improved outcomes across both the post-enrollment, prescription and patient journeys.

PSS Rare Disease is the only therapeutic area with patient-specific ordering and infusions and direct data input into the Sanofi iCare+ CRM. The data landscape spans 15+ specialized datasets, complex specialty pharmacy integrations, longitudinal rare disease patient management, and hundreds of data points that — only when properly structured — become the engine behind automated workflows, PSS interventions, HCP portals, and performance management solutions.

This role is not a policy-defining function alone. It is a technical implementation role that co-designs, enforces, and continuously evolves the data foundation PSS depends on. The Director must be deeply technical enough to challenge IT norms while remaining business-aligned and influential enough to prioritize value — serving as a co-designer and decision-maker, not a requestor, in all data-related discussions.

Join the team transforming care for people with immune challenges, rare diseases, cancers, and neurological conditions. In Specialty Care, you'll help deliver breakthrough treatments that bring hope to patients with some of the highest unmet needs.

About Sanofi

We're an R&D-driven, AI-powered biopharma company committed to improving people's lives and delivering compelling growth. Our deep understanding of the immune system — and innovative pipeline — enables us to invent medicines and vaccines that treat and protect millions of people around the world. Together, we chase the miracles of science to improve people's lives.

Main Responsibilities

Digital & Data Strategy Leadership

Own the PSS perspective on the Digital roadmap and align all data-producing digital initiatives with PSS business objectives

Bridge the enterprise teams of Digital/IT, US Data Management, Product Services and PSS Operations, ensuring PSS requirements are prioritized

Provide strategic oversight of core data platforms and emerging technologies

As the primary liaison, represent PSS data interests to PSS business stakeholders, IT/Digital, Risk/Compliance groups, and in enterprise governance forums

Data Architecture & Platform Integration